Monday, February 3, 2014

Effectiveness of Sensory Integration Therapy (SIT) for Autism - West Palm Beach Autism & Education | Examiner.com

Effectiveness of Sensory Integration Therapy (SIT) for Autism - West Palm Beach Autism & Education | Examiner.com



Unusual sensory responses are relatively common in children with autism spectrum disorders (ASD) and often one of the earliest indicators of autism in childhood. In fact, sensory issues are now included in the DSM-5 symptom criteria for restricted, repetitive patterns of behavior, interests, or activities (RRB). When present, sensory problems may interfere with performance in many developmental and functional domains across home and school contexts. Best practice guidelines indicate that when needed, educational programs for children with ASD should integrate an appropriately structured physical and sensory milieu in order to accommodate any unique sensory processing challenges.
Sensory integration therapy (SIT) is often used individually or as a component of a broader program of occupational therapy for children with ASD. While sensory activities may be helpful as part of an overall educational program, there is no reliable and convincing empirical evidence that sensory-based treatments have specific effects. A recent study published in the journal Research in Autism Spectrum Disorders systematically analyzed intervention studies involving the use of sensory integration therapy. A total of 25 studies were described in terms of: (a) participant characteristics, (b) assessments used to identify sensory deficits or behavioral functions, (c) dependent variables, (d) intervention procedures, (e) intervention outcomes, and (f) certainty of evidence. Analyses indicated that 3 of the reviewed studies provided evidence that SIT was effective, 8 studies found mixed results, and 14 studies reported no benefits related to SIT. Many of the reviewed studies, including the 3 studies reporting positive results, had serious methodological flaws. The study concluded that the current evidence-base does not support the use of SIT in the education and treatment of children with ASD. According to one of the authors, “Rigorous, methodologically sound studies do not indicate that it helps and, in fact, the majority of studies that were reviewed reported no benefits for children with ASD.” In sum, this review indicates that SIT does not qualify as an evidence-based, or scientifically-based, intervention and that the results support the omission of SIT from several recent peer-reviewed lists of evidenced-based practices for children with ASD. Likewise, the National Autism Center’s National Standards Project identifies SIT as an “Unestablished Treatment,” for which there is little or no evidence in the scientific literature that permits a conclusion about the effectiveness of this intervention with individuals with ASD.
The American Academy of Pediatrics has also issued a policy statement indicating that support is lacking for SIT. The group’s Section on Complementary and Integrative Medicine and Council on Children with Disabilities recommends that because there is no universally accepted framework for diagnosis, sensory processing disorder generally should not be diagnosed. They also conclude that although occupational therapy with the use of sensory-based therapies may be acceptable as one of the components of a comprehensive treatment plan, “parents should be informed that the amount of research regarding the effectiveness of sensory integration therapy is limited and inconclusive.”
Consistent with the Academy’s recommendation, interventions to address sensory related problems, when utilized, should be integrated at various levels into the student’s individualized educational program (IEP). Comprehensive educational programming may also include consultation with knowledgeable professionals (e.g. occupational therapists, speech/language therapists, and physical therapists, adaptive physical educators) to provide guidance about potential interventions for children whose sensory processing or motoric difficulties interfere with educational performance.
All interventions and treatments should be based on sound theoretical constructs, robust methodologies, and empirical studies of effectiveness. Different approaches to intervention have been found to be effective for children with autism, and no comparative research has been conducted that demonstrates one approach is superior to another. The selection of specific interventions should be based on goals developed from a comprehensive assessment of each child’s unique needs and family preferences. A more detailed discussion of assessment domains (e.g. communication, social, sensory, academic) can be found in A Best Practice Guide to Assessment and Intervention for Autism and Asperger Syndrome in Schools.
Lang, R., O’Reilly, M., Healy, O., Rispoli, M., Lydon, H., Streusand, W., … Giesbers, S. (2012). Sensory integration therapy for autism spectrum disorders: A systematic review. Research in Autism Spectrum Disorders, 6, 1004–1018. doi:10.1016/j.rasd.2012.01.006
American Academy of Pediatrics, Section on Complementary and Integrative Medicine and Council on Children with Disabilities, Policy Statement (2012). Sensory Integration Therapies for Children With Developmental and Behavioral Disorders. Pediatrics, 1186-1189. DOI: 10.1542/peds.2012-0876
Lee A. Wilkinson, PhD is the author of the award-winning book, A Best Practice Guide to Assessment and Intervention for Autism and Asperger Syndrome in Schools, published by Jessica Kingsley Publishers. He is also editor of a new Volume in the APA School Psychology Book Series, Autism Spectrum Disorder in Children and Adolescents: Evidence-Based Assessment and Intervention in Schools.
If you enjoy reading my articles, you can click on "subscribe" at the top of the page to receive notice when new ones are published. You can also follow me at http://bestpracticeautism.com.

Lee's Summit R-7 School District: When Our Issues Started

Lee's Summit R-7 School District: When Our Issues Started

Lee's Summit R-7 School District: Sent This Letter To The Superintendent In 2008 He Dropped Out Soon After

Lee's Summit R-7 School District: Sent This Letter To The Superintendent In 2008 He Dropped Out Soon After



I just sent this to my superintendent, special education director, special education coordinator, autism specialist, principal, vice principal, and three school board members.  Any suggestions would be appreciated.
 
 
My husband and I had some concerns after we left our evaluation meeting yesterday.  We feel that Jake needs an immediate change of placement.  We feel that Jake is not benefiting from being in Joyce Jackson's Resource Room and having Joyce Jackson be his case manager.
 
Joy Rose stated that we wouldn't be discussing change of placement until after evaluations, but I don't believe that is in Jake's best interest.  We are gradually losing him and I don't think a 60-65 day wait is in his best interest.
 
We spoke with Jake last night about his refusal to do what she told him.  She stated that she told him three times to do something and he refused.  She stated that she had to stand over him and make him do it. 
 
We asked Jake why he refused to do what he was told.  He told us that she only asked him one time and that he told her the rule was that he was to type if it were longer than 5-8 sentences.  What she was asking him to type was three sentences.  He is a rule follower and he believed that the rule was 5-8 sentences.
 
Jake has never complained about a teacher.  Even when we were having issues with teachers he would tell us that they weren't that bad.  He doesn't see people's intentions, good or bad, and expects that everyone lives by the same codes that he does.
 
Jake has been very anxious lately.  He has been irritable and extremely overwhelmed.  His psychiatrist was going to take him off of the medication that helps with his anxiety until he spoke with Jake.  He realized that school was too overwhelming for Jake to take that step.
 
Jake has liver enzyme tests done every four months to make sure that the medication is not affecting his liver.  The last two tests showed that his liver enzymes were three times the normal.  His psychiatrist is doing a consult with a liver specialist from John Hopkins.  I'm sure that he won't be able to take the medication after this.
 
The fact that my child has to take medication in order to attend school has always been a worry.  The fact that my child's liver could be damaged from that medication is outrageous.
 
While we were speaking to Jake he told us that he didn't like Ms. Jackson.  I understand that with typical kids that is normal and that they need to learn to deal with all kinds of different individuals.  Jake is not typical and it is the first time in 15 years that he has ever said that about another person.  That is a major issue.
 
I discussed this issue with Jerry Keimig in 2005 and told him that my son wanted to die because school was just too much for him. 
I met with Mr. Keimig for 15 minutes. I told him that I had read that most autistic children only respond to positive teaching. He told me that I couldn’t believe everything that I read. I told him that I wanted my son in a class with a more positive teacher or in a modified curriculum. He told me that he may not be able to help my son in the future. I told him that my son was depressed and that being in this class was making it worse. He told me that it was a good life lesson for my son
 
Jake no longer has a BIP because the district felt that it was not necessary.  I told them that I would agree to that as long as his educators were highly trained in his disability and understood the difference between behaviors that are caused by his disability and behaviors that are typical.  I believe that they do not understand this.
 
Over and over again we are told that Jake is resistant to this or refusing to do that.  No one ever understands that it is due to his disability and that they need to understand why he is exhibiting this behavior.  Perhaps if his teachers were trained and functional BIP were in place this would not happen.
 
Jake has been told by teachers that his mom is making his life harder.  That he doesn't have a writing disability and that his mom is making rules.  He believes these people.  That not only makes my job harder, but it makes the district's job harder as well because he is then resistant to the help that he so desperately needs.
 
Ms. Jackson is probably a fine teacher for children that are ED.  Jake is not.  Jake has autism and that requires a different type of dedication, patience, tolerance, and personality. 
 
Jake was given an Alpha Smart last year and it was kept in his 7th hour class and Ms. Jackson had to figure out how to use it each time that it was taken out of the closet that it was kept in.  Therefore, Jake believed that it did not work.  I stated this at the IEP meeting.  Finally, Ms Jackson let Jake use a class computer, which I had suggested in middle school, and told Jake that "I have figured out a loophole around your mom's rules."  That is unacceptable to me.  Joyce Jackson admitted in the IEP meeting that she had said this.  Jake came home and told me that I was making things harder for him because that is the impression that he received from this teacher.  My advocacy for Jake should never be discussed with Jake without my permission and should never be used as an excuse to find loopholes.  
 
I asked Jake why he was resistive to using the laptop this year.  He said that it takes so long for it to boot up. This is a child with organizational issues and a child that can not follow more than two step directions.  While he is getting his computer set up he is not being able to hear what the teacher is saying or what is going on in the classroom.  He asked why he couldn't just use the computer in the classroom like he did before.  So, Jake is not resistive to using AT, as is the district's position, Jake is resistive to using something that he feels is making things even harder.
 
His present level states that the district feels he is resistive.  Once again, this should be addressed in a BIP.  They put the following in his IEP in May, "Jake has been resistive to carrying the Quick Pad to classes."  I asked that it be changed because the statement was not accurate.  In August we had a meeting and the following is taken from my notes, "As for the issue about the assistive technology, they added a sentence that stated, "Mrs. Tucker believes that this was because he believed it did not work."
 
I told the team that I disagreed with that statement.  The device didn't work in Jake's mind and that's why he didn't want to use it.  He was not resistive to carrying the Quick Pad to classes.  He was resistive to working with a machine that didn't work.  The team refused to take that out.  I was told that I am the expert on Jake at home and the district is the expert on Jake at school.
 
I would like to state that I find that offensive and incorrect.  If the district were an expert on Jake, at school, all of his teachers would be HIGHLY trained in his disability.  I wouldn't have to go to meetings and explain Jake's actions, issues, etc if the team at school was an expert on my son.  If the team were an expert on my son, they wouldn't have put him into a class that A) he was not qualified for and B) was totally inappropriate for a student with autism.  If the team were an expert on my son they would not have recommended an art class for a child with dysgraphia or a music class that he surely would have been overwhelmed in.  This is not the first time that the team has suggested a class that was totally inappropriate for Jake.  It was disastrous before and I'm quite sure that it would have been again if Jake had qualified for the 1st hour class."
 
It also states the following, which once again proves that the district can't differentiate between typical behaviors and behaviors due to his disability.  "Small group testing was changed to "Access to small group testing with rephrasing of directions."  We had a very long discussion on what that meant.  Joy Rose stated, "Historically Jake has refused to take tests in a small group and it resulted in meltdowns and shutdowns."  I would like to know where that information came from because it is totally inaccurate and should not be in Jake's file. 
 
Jake always took tests in small groups at Prairie View.  It was no big deal and it lead to higher test scores.  When he entered Pleasant Lea they did not give him tests in small groups.  His IEP stated that they were supposed to.  Then they finally agreed to do it, but they asked if him if he wanted to.  Most times he said no.  That is not a refusal.  That is a child being given a choice and choosing. 
 
Had the district implemented his IEP throughout his ten years in this district, this would not be an issue right now.  I have no problem with Jake taking tests in the classroom as long as he understands what the test is asking of him and he is able to take it.  Making a child sit in the hallway is not my idea of small group testing and that is what has been offered on more than one occasion." 
 
On that same discussion, I would like my notes added to the district's conference notes.  The Lee's Summit School District refuses to allow parents to tape record meetings and it is not acceptable that the only conference notes in my child's file would be from the district's viewpoint.  That is not allowing me to be a full participant on my son's IEP team.  I been not been allowed to be a full participant in the past and I would like to see that change. 
 
Also, I have been in contact with OSEP and my contact told me that it was inappropriate for the district to make the statement that the district is the expert on Jake at school and I am the expert at home.  They also told me that Jake should have a dual diagnosis.  One would be educational autism and the other would be ld because of his written language deficit and his dysgraphia.  The team at the meeting yesterday told me that Missouri doesn't do that and I advised that I was contacting OSEP today to ask her why she would advise me to do that when it is not something my state does.  She also advised me that she would like for me to seek mediation and I told I didn't feel that we were there yet and would like to handle this among ourselves.  She is waiting for my report from my meeting yesterday.
 
I have repeatedly asked for help for my son.  He is 15 years old.  By the time that his evaluations are done he will have 2 1/2 years left of school.  He has 2 1/2 years to make up for the last 10 and to make progress.  That is not much time and revisiting the same issues year after year continues to rob him of his future. 
 
Thank you.

Friday, January 24, 2014

AutisticChick: What I saw

AutisticChick: What I saw



I left the gym, I had to, because the music made me uncomfortable. I stood by the door. 

I waited. I turned toward the door to the gym, and I saw a classmate burst through the door, an aide inches behind him. The aide grabbed a strap on his vest and stopped him cold. The student struggled. Aides thronged at the little windows.

I know what they saw. 


They didn't see someone asking to be taken for a walk. They didn't see him begging to have some space. 

They saw an escape attempt. A noncompliant escape attempt. A student trying to outsmart the teachers, to get his way. 

They saw someone who didn't understand the point of P.E.

They saw a runner.


He pulled away, and the aide pushed him back  through the gym door, shouting "In we go! In we go! In we go," his hands pulling and pushing as the student dug his heels in. Everyone else "encouraged" from the sidelines. I saw too much happening.

I saw an apraxic struggle. I saw a nonverbal student being pushed through a door in a frenzy of movement, everyone shouting at the same time, bent over with hands thrusting at his back, pushing against the doorframe and struggling to stay upright. I saw too much, too much.

I saw a blur of movement and sounds coming at me from every direction, I saw the ceiling the doorframe the floor somebody's hands everyone shouting. I saw the final thrust through the door, met with bright lights and cheering, everyone applauding the nice save! 

I saw dizzy and disoriented. 

I saw what he saw.


I saw a classmate who couldn't respond to prompts because they were coming too fast, and who couldn't comply because everything was being thrown at him at once.

He slumped against the gym wall and slammed his head back. The act was met with a sharp reprimand from a bystanding aide. And I know what they saw.

They saw defiance. Headbanging behavior. A tantrum.

I saw a student trying to block out external input. I saw. Everyone else gawked and chattered as the other kids did the warm-ups. I stood by helplessly.

I saw a humiliated man sitting against a wall in a corner, helpless and outnumbered, with no way to communicate.

 I saw what he saw, the flash of students flying all around me and I saw people surrounding me, cheering, cheering for the aide as though it was some big victory to drag a student back into a classroom. I saw the world whirling around my head and it hitting the wall just to drown out the noise. 

I saw that nobody was asking themselves how he might feel. I didn't just see the defeat, though, the lack of dignity or respect; I saw humiliation. Oh, yes, I saw. Pain.

I watched in horror. I felt for him. I felt with him. An aide, concerned that I had left, asked me if I was ok. Then she smiled at me knowingly. Chuckled, "He's having a little fit."

No. That's not what I saw.

I saw an overwhelmed student trying to escape a hostile environment. An attempt to find a safe place, or a bathroom, or some water. 

I saw a hasty and disjointed "rescue" that fried his emotions and ability to think. I saw visual, auditory, vestibular and tactile input slam him like a truck. I saw vestibular upheaval, and I saw desperation and fear and frustration because nobody understood, not one of them. 

They saw a fit. 

They didn't see what I saw.

*****


I know, I mouthed across the aisle. It's ok. I know. He smiled back at me.

I know. 

The bus engine rumbled, and we began to pull out of the lot. They were still talking about him, imputing motives based on their own experience. I knew that he could hear them. That they didn't really care. That it wasn't my place to correct them. To try and educate them. Not the student's place.

 I saw the look on his face, and I knew that nobody understood. 

He sat alone, leaning against the vinyl of his seat, his expression fraught with distress, his eyebrows knit. I knew that they were fine, and they could sit there and casually theorize about it, but that he was still coming down. I saw the look in his eyes. I didn't know what to say. 

I saw his hand, resting on the seat. Hesitating, I leaned into the aisle and placed mine next to it. I didn't know how else to say I support you.

His thumb wrapped itself around two of my fingers, and for a moment it was like that. Then he lifted his hand and took mine in it.

I squeezed. I know.

We stayed that way for about a minute. The bus rumbled down the street, curving around the corners, my hand in his. 

They said I helped calm him down. Sometimes people underestimate what it means to acknowledge someone's humanity. To see it. I don't know what they thought my gesture was, but we knew what it was. A show of solidarity. A quiet one, not a trumpeting fanfare, but a whisper. I know.



This is what I saw. Very different from what the teachers saw.

I don’t know exactly what he saw. I believe that it was terrifying.





But I hope . . . I hope . . . that after the terror . . . I hope that he saw a friend.

Wednesday, January 22, 2014

What Are You Doing? | The Autism Site Blog

What Are You Doing? | The Autism Site Blog



Autism is a difficult condition to accept, but imagine being the peers of a child diagnosed with autism. Confused and unfamiliar with the actions of an individual with autism, some children may resort to negative assumptions of why a child with autism acts in certain ways.
Watch this informational film that helps children understand children on the autism spectrum and how they can accept and relate with them more than they think.

Read more at http://blog.theautismsite.com/what-are-you-doing/#zdaX7Td78ygqfF6z.99

Swimming With Autism | The Autism Site Blog

Swimming With Autism | The Autism Site Blog



We have begged Lee's Summit to use their $12 million aquatic center for this.  It should be in their student's IEPs.  But, they won't do it.



Ten-year-old Daniel is non-verbal and was diagnosed on the autism spectrum. But his diagnosis has not stopped he or his family from giving him the opportunities that all children should have such as the chance to swim. For the past six years Daniel has been working with a swim school to learn not only how to swim, float and have fun in the water, but at the same time learning how to communicate.



Watch as the co-owner of this swim school describes the successes Daniel has shown over the years and how it has helped him to become successful in listening and following directions. Autism won’t stop our kids from living and enjoying the activities that every child should enjoy!